The Progeria Research Foundation (PRF; www.progeriaresearch.org), the only organization in the world dedicated to discovering treatments and the cure for children with Progeria, announced the launch of ‘Find the Children - 60 in India with Progeria’ campaign. The campaign is designed to create awareness among the general public and healthcare providers, in order to locate and assist children with this rare and fatal rapid aging condition.
Progeria, also known as Hutchinson-Gilford Progeria Syndrome (HGPS) is a rare, fatal genetic condition characterized by the appearance of accelerated ageing in children. Children with Progeria die of heart disease at an average age of 14 years — the same heart disease that affects millions of normal aging adults. Other symptoms of Progeria include stiffness of joints and hip dislocation, growth failure, loss of body fat and hair, and aged-looking skin that gives children with Progeria a unique and similar appearance, despite differences in ethnic backgrounds, informed Audrey Gordon, President and Executive Director of PRF.
According to Dr. Leslie B. Gordon, Medical Director of PRF. “All children with Progeria must have the opportunity to benefit from our efforts to find treatments and a cure, so please help us find children with Progeria in India.
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